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Tuesday, 7 February 2017

Position Vacant

SCENE ONE

ASHLEIGH staggers into an over-bright boardroom in a workplace office. Furnished with a long board table, and many wheel-footed office chairs. Ashleigh flops into a chair at the far-end of the table. She is sucking on a straw plunged through a juice popper. 'B'sits beside Ashleigh. 12 OTHER COLLEAGUES take seats around the room.

ALL (singing): 
Happy Birthday to you, Happy Birthday to you. 
Happy birthday dear colleague, happy birthday to you.

Ashleigh waits until the singing has stopped and lowers her forehead to the table.

COLLEAGUE 1 (to Ashleigh):
Are you alright?

COLLEAGUE 2:
Are you sick? What happened? Are you ok?

COLLEAGUE 3:
Oh yeah, you don't look too good. Are you right?

Colleagues continue firing questions. Ashleigh makes vague grumbling noises, raises her juice and makes shooing motions with her hands.

B:
She's fine. Just leave her alone. She's just having a
low blood sugar.

COLLEAGUE 3:
Do you need us to get you anything?

COLLEAGUE 1:
Ohhhh, I'll get the Glucagon! Can I give you a shot?

B:
She's got her juice. She'll be fine. Just give her a few minutes.

COLLEAGUE 1:
Why can't we use the Glucagon?

ASHLEIGH (with some energy now):
I have a juice. I just need quiet for a few minutes. You can't use 
the Glucagon unless its an emergency; only if I'm unconscious or 
can't have sugar. 

END SCENE




When you have a self-management  heavy disease like diabetes its important that you have a few people around you like S who are on your side in your day to day life. There's a lot to diabetes.

It takes a lot of time, energy and effort to train a Diabetes side kick. You work at educating them over many months, maybe even years. Slowly feeding information through small conversations or simple statements. Whether you mean to or not with these people, you create a relationship with them that involves some amount of diabetes knowledge download.

So I have people. I have friends who I knew before I was diagnosed, who picked it up as we went along. I have family who I expect a lot of. I have diabuddies who I don't need to explain at all to. I have a work colleague. Change that to had, because S will be finishing up her job with my workplace at the end of this week.

I have to start fending for myself again at work. Its helpful having someone who knows your diabetes in situations like the birthday cake hypo debacle. (Which continued on past the initial hypo. I had people asking me days later if I was 'feeling better yet' which really confused me because I didn't remember taking any sick leave or feeling ill. I had to be reminded of 'the other day in the boardroom at morning tea'.)

Its impossible to spread the knowledge among too many people, so if you can have one or two people that know enough about what is an emergency, what a hypo is and when everyone else should leave you alone and stop talking, then you're doing alright.

Goodbye to my work diabetes look-out. I'll never train another quite like you. Thank you for never talking to me when I'm hypo. not stabbing me unnecessarily with the Glucagon, not judging, bothering to listen to my diabetes natter, and all the jaunts down the road to stock up on juice when I ran out.

Monday, 30 January 2017

PoGo

What did I do in 2016 when I was ignoring my diabetic self?

A lot of exercise.

Pokemon Go was where it was at (ok, its still where I'm at, at least until I find the last 3 non-regional monsters I need to complete my PokeDex collection). I did a lot of walking in the latter half of 2016 trying to hatch distance-based pokemon eggs and find new Pokemons.

It helped to have something to concentrate on as I walked. I have always found exercise to be mind-numbingly boring. Or it made me anxious. PoGo took care of both the boring and the anxiety. I was able to forget how nervous exercise made me (thanks for that, diabetes) when I was concentrating on catching little monsters.

I started off small. I have always walked during my lunch hour, so I increased my single block to 2 or 3 blocks (had to try to get as many PokeStops as possible). Then I started off walking 4km in the afternoon after work, then worked on getting my time down as I got better at catching monsters and not tripping over my own feet. When I had gotten my time down, I added more distance and found a 6km route to walk.

I kept going and as my PokeDex got fuller, I got fitter. My 6km route morphed back into a 4km route when I found an exercise park that I could stop off at and complete a few sets of muscle based exercises. I upped my reps. I stopped catching as much Pokemon and my exercise time ballooned out from around 50 minutes a day to around an hour and a half on weekdays, and over 2 hours per day on weekends.

On weekends I vary my exercise a bit more. I might go for a bike ride, or a longer walk for a few hours. Sundays are Springwood Conservation Park Day, where my husband and I go to do laps. There's a very steep set of stairs followed by a 1.5km circuit that I jog 3 times. The stairs are an absolute killer and going up them 3 times is more than enough to give me the lovely 'going to puke my guts up' feeling that you really want when you're trying to run.

I recently started adding jogging to the mix. At first I was breathless after 100m, but I can now run nearly 2km before I need to stop and walk for 30 seconds before starting up jogging again. Every day I push myself to jog further, even if its just a few meters past where I made it to the day before. The only problem with that is, I cant PoGo and jog very well. So I am just turning on the app and then sticking it in my bag while I jog, so that at least I'm walking my Buddy Pokemon and hatching distance-based eggs.

The plan is to eventually be runnning the full 6km while still adding a stop-off to the exercise park. Or maybe getting a 4th lap of the Springwood Stairs in before I get the shaky 'about to vomit everywehere' feels.

Not everyone understood the appeal of PoGo, but for me its managed to keep me interested and pushing myself to get fitter for over 6 months now. Slowly, but at least I'm getting there, and for the first time in my life I'm actually enjoying exercise. So theres a plus. To everyone who complained that there were too many young people out walking their phones, there's a plus.

Monday, 23 January 2017

I think I had Diabetes in 2016

I think I had diabetes in 2016. I know there were nights that I didn't sleep and days where I slept too much because my blood sugar didn't really do what I had planned for it that day. There were finger-pricks and site changes and pump battery changes. There was blood and insulin and sticky-leftover residue from CGM tape. Diabetes was there. I'm sure of it. I can't tell you what my last A1c is, not because I don't want to, but because I don't remember. If it was better or worse than the one before that, I have no idea. But I am vaguely aware that at a few points along the year I let someone siphon some blood out of my arm to produce some readings that I paid no attention to.

I lost my diabetes voice in 2016. It hung in there for a little while at the start. I just got too tired, too busy, too overwhelmed with life to keep hearing it. "Check Your BG" got swamped by the sounds of my rattling washing machine every Saturday morning. "Change Your Basal Rates" was drowned out by copious amounts of Netflix. "Advocate!" couldn't be heard beneath my new nephew's sweet little coos. I didn't take "Be prepared" along to work with me each day, and found myself completely out of test strips, insulin or both more times than I cared to count. (Thankfully there were people close by who helped me pick up the slack during those moments of complete unpreparedness).

In 2016  I let diabetes 'just be there' quietly in the background. I began to accept that sometimes you can't have perfect control...and that that sometimes might span for a year or more. Life was too busy for diabetes.

I think I need my diabetes voice though. My diabetes needs my diabetes voice. It helps.


















Thursday, 29 December 2016

Company

There's little about the world around you that you pay attention to when your blood sugar is low. A public space can diseappear quickly. People milling about, fast movements, babies crying, gossip amongst friends, or a fantastically coloured dress all cease to exist when you're in the realm of your low. You don't have the concentration to see separate objects, and noise mutes and dulls.

I was low today (thanks, Summer) at my local shopping centre. My foggy brain managed to distinguish an empty table that I could sit at and quietly drink my juice. It was a knockout low. I was glad for the table because breathing was difficult and my legs had gone past jelly stage and seemed to made of vapour; I couldn't imagine how they would support me at all.

As I sat and sculled my juice, a lady in her early 60's motioned to the other chair on my table. I had no idea what she wanted but I just nodded anyway. I didn't care, so long as I could drink my juice. She sat down next to me, plonking her bag heavily onto the floor beside her feet, A plastic cup in front of her. I could smell the coke in the cup, fizzing away.

Minutes passed in silence. I recovered from my hypo. I re-entered the world and began to pay attention to the lady who was had sat down opposite me. Her shoulder-length, slightly greying blonde hair was mussed. Her eyes were tired, and lips were tight as she rubbed them against each other. She was hunched over, and paying no attention to my stares.

In a beautiful moment I understood, as her hands rubbed over her face and she made a soft little groan of discomfort. I had been there with her, moments before, in that closed-off space. She sipped her cup of coke in the same way I drink soft drink when I'm low. When you need to swallow quickly, but the bubbles get up your nose, and the experience is unpleasant. The pursed lips and look of disgust written on a crinkled nose and squinting eyes as you force liquid you don't want into your body.

I stayed and waited. Her back straightened out and her hands ceased their repetitive rubbing of her face to rise up and smooth her hair down. Her eyes opened up, brighter and her the tension had left her cheeks. In silence, I checked my blood sugar. She didn't flinch at the blood that welled up from my finger tip. She offered a smile instead, and asked if I was feeling alright. I nodded and asked her the same. We gathered our things and left in opposite directions.

The whole drive home, I couldn't stop thinking about what a beautiful, surreal encounter it had been. The chance we had had to share that lonely, dark space that a hypo occupies and to feel understood.








Thursday, 8 September 2016

Drink. Eat. Drink. Eat.

I am hollow. Vaguely aware that I have a shell of skin and hair molded into human form. Not strong enough to hold whats supposed to be inside.If there is anything inside; but I can't feel it. I don't feel like my skin is my own. There is nothing to feel when I scratch my nails across my face, trying to stimulate a sense. My chest is empty, even as my heart feels like it's beating too fast, and my lungs are too heavy. I watch my fingers wring together but I am disconnected from any feeling. When I clumsily bang my leg against a table, or a wall, I do not register it, even if I scrape the skin off and bleed. My body doesn't know that its happened. I am numb, in every sense.

In this state, I am not a person anymore. Who I am has left me. What I am has left me.

There's a monster in my body. Controlling me. It's only goal is to feed. The monster gets angry when it's interrupted. I get angry for the monster. I am not me anymore. I am a vessel for the monster, and my body is not my own.

I am simply a pipe connecting my mouth to something that's supposed to be in my stomach. That is all I focus on. How to get liquid down that pipe. I know it must go in my mouth first, but I'm not aware of how this happens.  The air is thick and stale and the liquid I swallow on impulse is tasteless in my mouth. There is a vague and far-off sensation that food is in my mouth, that I am chewing, but it doesn't matter what. That is not the point. The point is to get it down. Drink. Eat. Drink. Eat.

My eyes are unseeing. I stare ahead without taking my surroundings in. I am not sure if they even exist. Everything is flat, and I believe that the landscape around me has been hastily painted on. The doorways are uneven and faces are blurry. I don't always manage to touch the things I am reaching for. I can see darkness in the corners of my vision and I think it is growing. Creeping closer. Maybe this is where the monster lives.

My body doesn't do as its told. I want to run away from this place. The monster in me keeps me captive, it skews my legs and makes my head swim if I try to lumbar away from the path it wants me to take. Even on the path it chooses I still sway, and trip as I feel my way towards what it wants. Drink. Eat. Drink. Eat.

There is cotton in my ears. Words are said but they don't make sense and they aren't important. Too many voices confuse me in this strange place. There is only room enough in my head for one voice. Snarling. Drink. Eat. Drink. Eat.

I can feel the monster in my skin as I feed it. It is stretching through my limbs, pushing against my bones and muscles. Sinews that I had forgotten I had, but feel heavy now as they strain tight beneath my skin, stretched by the monster who is growing. I ache, but I am feeling.

I am feeling and I am fighting back. Sound is exploding into my head as I rip the cotton from my ears. Light is over-bright as I fight my way through the dark and focus my vision. My chest is burning now from the effort of this battle of wills. My breathing is laboured, and I suck fresh air greedily as I fight to determine who will control me. My skin tingles and sweat prickles over my arms as I force the beast from out of body.

I win eventually. It takes me a while to recover. I feel nauseous. My body wants to rid itself of the food the monster fed into it. Every inch of me is tired. My toes are even tired.

I delight in wiggling them, knowing that they are mine. I am human.



_________________________________________________________________________________

Reasons Why I'm Hypo:

This is hypo.

Wednesday, 24 August 2016

Endoscopic Review

There are some rare perks to having Type 1 Diabetes. Being first-in-line for a medical procedure is one of them.

I recently had an endoscopy to check for coeliacs disease and when I first called up to book I was offered a mid-morning appointment. It wouldn't have suited my diabetes at all. I casually dropped the magic 'D' word into my next sentence and I could almost hear the scramble on the other side of the phone to come up with a better time. Within 10 seconds I had been bumped up in priority to the much coveted procedure prime-time at 6.40am.

In the weeks prior to my endoscopy I did all the necessary, glutening myself up and setting appointments with my educator and endo for proper management during the procedure. The nurse at the endoscopy clinic became my new best phone buddy, working through the procedure with me beforehand to make sure that they had a handle on my Type 1 and my insulin pump.

After 4 frustrating weeks of glutening myself, dealing with the pain that came after eating and the resulting hypos, I was cheering when the morning finally rolled around.

My husband dropped me off on his way to work and sat with me until it was time for the procedure. Despite being nervous I was doing well. It made it a lot easier knowing that I was first in and wouldn't have to wait for anything.

Shortly after arrival I was called in to an assessment area where I met the doctor performing the endoscopy and went through a medical check, where they tested BP, my BGL, weight and height, and the details of the last food and drink I had had. To get an endoscopy you fast for 6 or so hours prior, so having the first appointment of the day was really helpful. I had accidentally consumed 4 jellybeans at 3am when I woke up a little low, but they were fine with this. I was asked if I had any questions and the only thing I really cared about was that I would be put out to it as I had read that some people were awake during these procedures. I was assured that because I had ticked the anxiety box on my pre-admission forms that I wouldn't be aware of anything happening to me.

After the assessment I was led through to the op area and set up in a bed where a nurse attached a BP monitor, pulse oximeter and inserted a cannula into the inside of my elbow. I met the anesthetist who once again reassured me I would be out to it. The anesthetist was the one who was in charge of my diabetes during the op, so I took him through the management plan my educator had set up with me. I checked my blood sugar, which was on 12 and rising (which it does every morning until I eat breakfast) so I kept my basal rate on my pump as per normal. I showed the anesthetist where my pump canula was inserted on my hip and the CGM in my arm and taught him that to check my blood sugar he could simply press the middle button and my CGM reading would show up on the pump screen. He was happy to let me self-manage as it was such a short (20 mins max) procedure.

It was as I was explaining the CGM that a second nurse entered stage right to remark on my insulin pump.

"An insulin pump?" She remarked, "What do you need that for?" I thought the answer was pretty obvious but replied that it was to help manage my Type 1 Diabetes as an alternative to injections.
"Ohhhh, so you must have really bad diabetes then if you need that, hey. And you're so young."
The last thing I needed as I was getting ready for a procedure was aggravation like this. I bit my tongue and explained that the pump was just another means of insulin delivery, similar to needles but with less injections and more freedom. She turned her nose up and sniffed that she "would prefer injections, if you ask me, because no-one can see that you have diabetes that way."

I went to reply, but I think the anesthetist either noticed my BP rising or the daggers I was shooting this nurse, because before I could reply he had motioned the other nurse to place a round tube into my mouth and announced that he was going to be putting me out right now.

40 minutes later I was hazily opening my eyes in recovery, feeling lovely and relaxed, wondering how I could get my hands on some anesthesia for home use and trying to avoid the nurse seeing that I was awake so I could just lie there a little while longer. She did eventually notice that I was lying there with one eye crooked open and bustled over to see how I was doing. She checked my BG (which I could already see had remained stable on my CGM) and got me up to have a breakfast of ham sandwiches.

20 minutes later I was being released into my mums care with instructions that I should receive the biopsy results in a few weeks' time.

The procedure was a lot easier than I thought it would be and I was surprised at how well my BGL held steady without any temp basals. The staff were all lovely & professional (minus that one nurse) and the only thing I wish I had been told about before was that its quite common to have sternum pain for up to a week after the endoscopy.


Monday, 18 July 2016

Both Feet on the Ground

This year Diabetes Australia focused on the 4,400 diabetes-related amputations per year, 85% of which are preventable. The campaign was received with mixed results, most likely because it did address an issue that people don't like to think of in relation to themselves or their clients.

I don't think I'm alone in wanting to ignore the more serious side to diabetes - the side where you may develop complications despite your best efforts to train your diabetes to sit and stay on command. I will readily admit that when I first saw that the key messaging was regarding amputations, my instinct to protect my vulnerable diabetes psyche was to ignore diabetes social media for the week. Which I somewhat did. I didn't want those images. Fear of complications is very real, among all people with diabetes, and each person deals with those fears differently. I deal with my fear by trying to maintain good blood glucose control and follow the annual cycle of care to prevent complications.

The problem is, I have to think about complications more than I feel comfortable with, because I follow the annual cycle of care. The current medical system in Australia favors those in the know about their health, and for those with little time or education on how to access various services, it is easy for them to get left behind in their diabetes management and complication prevention. The current onus when it comes to preventative care and measures is on the patient. The patient has to ask to see the podiatrist, they have to remember to see the optometrist, the patients schedules an appointment with the nurse for an updated chronic disease care plan. I don't always remember to include the podiatrist in my ever-rotating list of doctors and I rely on my yearly drivers medical as a reminder to see the optometrist, as just two examples. That's a lot of work that I have to do. A lot of appointments that might fall through the cracks. And a lot of know-how to get the system to work for me.

So I for one am welcoming this years National Diabetes Week messaging around preventable amputations. The campaign worked both to educate health professionals to pursue the annual cycle of care, including regular podiatry checks, and also to educate patients on understanding what sort of checks they should be getting, and when to seek help so that they don't end up with an unnecessary amputation. The messaging this year is as much about starting these conversations with your health professionals so that they can help you to tick off all the boxes relating to complications screening as it is asking you to be aware of your own body. In doing this, it alleviates some of the burdens for me, as a patient.

I have worked so closely with my GP and the practice nurse in regards to my diabetes-related care that they are starting to look through my records without prompting. At appointments they ask to make sure all my checks are up to date - and if they aren't, they then look for someone suitable and schedule an appointment for me so all I have to do is show up and everything else gets looked into. But this was a process, for both of us. I used to have to be the one to follow up and ask, and keep tabs on my out-of-date check ups.

Some of the complaints listed against the amputations campaign this year were in regards to diabetes-related distress linked to fear of amputations and other complications. People are generally afraid of the unknown and amputations and our future with diabetes is often unknown. So what if we try to make the future known? What if we provide patients and doctors alike with the knowledge of what to do in the early stages of the disease, or the early stages of an infection, on what to do to prevent this from ever happening. How much less distressed will people be, knowing that there are things they can do, and do now, to prevent the majority of amputations.

There were complaints that the messaging this year wasn't 'positive enough' and that National Diabetes week should only consistent of 'Girl-Power' style awareness where we show the public that we all have 'D-Power'. I think we're already doing this well enough though. For every diabetic who has ever pushed through a day high, low, yoyoing between both and tired AF, they're showing that we have the D-Power. We've got sportsmen and sportswomen, TV presenters, singers, a prime minister and just everyday people who all show that we with diabetes, we can do anything that we set our mind to. I don't worry about the public perception in regards to this but public perception does need to change where complications are concerned. It's no wonder we get stupid remarks, if we are too afraid to address the issue ourselves.

Why don't we turn a negative complication into a positive message? That won't hurt anyone. Not raising awareness about the risk of amputations and what can be done to prevent them for people who live with diabetes, and their health professionals - that will hurt someone. They might even lose a leg over it.

Friday, 15 July 2016

Pulp Fiction

I added an item to our staff meeting agenda at work the other day, and it had absolutely nothing to do with my job. It was a bit of a selfish agenda item.

At the end of the meeting, when all the staff attending by conference call had logged off, I called attention to my diabetes. Everyone at work knows I have it, my diabetes is not something that I hide. Some understand my diabetes fairly well, some the basics and some I am still working on educating.

I fielded an errant comment only a week ago during a staff birthday morning tea that I wouldn't be able to eat cake next week (now this week) because it would be National Diabetes Week. I am not sure how it being National Diabetes Week prevents me from putting cake in my mouth, but I'm beginning to think the commenter was on to something, because I am super high right now from the cake I did eat today at morning tea. We have lots of cake here. And I have a lot of salads that I don't want for dinner as a result.

Hands Free Hypo.
Conversations continued later that day when I was walking around with a juice box tucked under my chin treating a hypo. I don't usually allow people to see me treating a hypo because I tend to get cranky and I just want to be alone. This was one of those rare times when I allowed other people near me. Naturally, questions were directed to me about hypos, how to treat them, and then if they should/could do anything and if so, when. I went through the usual explanation and ended with instructions that if myself or the other diabetic at work were unconscious, that we should be given Glucagon, and how to give it.






"Like in Pulp Fiction?" someone said, and mimed stabbing a needle into their chest.

Almost, but with a little less 'aggressively stabbing needle to the heart' and more careful insertion into a large muscle

The next day I added a Glucagon demonstration to the staff meeting agenda, which is how, in the middle of National Diabetes Week, I came to be holding a diabetes special of 'Show and Tell' at our staff meeting. Complete with demonstration from a dead (expired) kit I had been hoarding at home.

_________________________________________________________________________________
Reasons Why I'm Hypo: I rage bolused to get rid of the stubborn post-cake high. Rage bolused kicked in hard.

Thursday, 7 July 2016

NDS-What? (Part Two)

My pump site was due for a change on Monday morning. I went about gathering the necessary items for my set change: Canula set, reservoir, alcohol swab, insulin. Except when I scavenged for insulin in my fridge I found a single vial rolling around at the back of my fridge. Essentially I only had 6 more days of life stored. With half of that vial going into my pump during the set change, it was 3 days of life left in back-up. I obviously made getting new insulin a priority, and scheduled an appointment with my GP to get a new script (I didn't have one already). When I did another set change today, it meant that I had absolutely no insulin left as a back-up. Feeling a little bit panicked (Ok, I was more than mildly freaking out) by my lack of organisation, I headed off to my local chemist as soon as I had the script crumpled into my hand, and luckily they had some NovoRapid in stock (Usually they have to order it so I was lucky!).

While I was there, I thought I should place an order for my brand of test strips, as its not a common type and I have yet to see it stocked on shelf anywhere. I had actually been organised with this, and had made a specific trip to my chemist back when the NDSS changes were first announced. They assured me they would read up on it and prepare, and I gave them the product codes for the pump consumables and test strips I usually used.

I requested my test strips, and was told that I was the first person to have asked for a special order under these changes. I expected as much. What I didn't expect was to be told it would be 2 weeks....2 whole weeks....before they thought they could expect a delivery, as they had not yet 'figured out the system'. Luckily I am not as disorganised with test strips as I am with insulin...I have one and a half boxes of strips left, about 3 weeks worth of supplies.

The '2 weeks' statement left me a bit in shock. As far as I had been able to read, there was supposed to be a 24 to 48 hour turnaround on NDSS supplies with this new change. 2 weeks is well, well over what I consider acceptable. I was pissed off at the move from Diabetes Australia as NDSS providers to chemists as sole providers by the federal government. It's scary having to rely on small metal strips to control a disease. Its scary when you are told there's essentially a 2 week wait to get access to these things that help to control your disease. Its scary when that control is ripped from you by a government who will gladly sacrifice your health to save a buck or 2. Its scary when the issues you were worried about with the provider change, turn out to be something that you actually need to worry about instead of just being crazy what-ifs. When the worst case scenario, that you can no longer easily access the tools you need to survive, becomes your scenario.

I left, being told to call back in 2 weeks time, when they 'hoped' that the strips would be in. As I was gathering my things to leave, the pharmacist made the comment, "I've ordered you one box, that's it right?". No, not if there's a 2 week wait on supplies everytime, its not. I changed my order to several boxes, and will see how many I can get away with. No matter how this pans out, I don't trust the new system, Not with my life, So I'll continue to stock like the apocalypse is right on my doorstep, and will make sure I never put myself in a situation where I have less than 3 months supplies at any given time.

 It's just another added layer of thought I have to add my diabetes management now.

Thursday, 23 June 2016

King meets King

If you've read a few of my recent posts you will know that CGM funding, and especially the extension to adults, is obviously something I am quite passionate about. As far as I am concerned, just because I can no longer walk around in frilly pink dresses without getting sidelong glances, doesn't mean that I don't deserve the same equal access to healthcare as the cute 5 year old with pig-tails.

I was very excited to be given the chance to talk with Shadow Health Minister Catherine King and ALP Candidate for my electorate of Bonner, Laura Fraser Hardy, about the recent CGM funding announcement.



Along with 2 families with Type 1 Children, we were given the opportunity to chat about what the election funding commitment could mean for us, and the positive impact that new technology can have on our lives.

Before I met them, I was quite nervous to be talking to Catherine and Laura. I felt like there was a lot of pressure (that I put on myself) to make sure that they really knew what it meant to be having this conversation about CGM. What is an election pledge for them, is potentially someone with Type 1 Diabetes' life. Potentially my life.

I don't know what I was worried about. Catherine and Laura were very involved in the conversation and I felt that they were really trying to understand what it means to live with Type 1 Diabetes. They were both friendly, attentive and inquisitive about not just CGM, but about pumps, injections, blood glucose testing and diabetes in general. I use CGM full-time, so I was able to pull King out for a bit of show and tell, including letting Catherine & Laura see the pros of CGM with a 'Suspend Before Low' (that I never had to treat for) captured on my graph before lunch (bonus points to me, I was having a nice smooth day with a graph of 7 and below for the previous 15 or so hours).

Introducing King to Laura & Catherine
I got to do what I wanted and had a conversation with Catherine about the inclusion of funding for adults. Obviously I would still like to see the funding extended to adults with no requirements, as with the funding for children. This is a problem across the board for diabetes technology though, including insulin pumps, where adults have to jump through hoops to be funded, but children don't (Yes, I did make these comments too). There's always room for growth, but at least that initial proposal is including adults, which opens up a door for further expansion on the programs. I don't doubt that Diabetes Australia and JDRF will continue advocating for access for everyone.

To read more about the ALP's committment to CGM funding, you can read diabetes Australia's statement here.